Wednesday, March 26, 2014

1st generation in my family for these illnesses~

Sept 27, 2013 into Oct 2-3, I get worse and worse & aalllllllll the crazy symptoms come back with a vengeance, lethargic, strangulation feeling x's 10, can't speak and when I tried it is a super strange froggy toad sound with lots of pain, the thought of speak puts me in excruciating pain, the strain my body feels makes a permanent crease in the brow furrow, tremors, body aches and pains like the flu, fingers/toes split open and bleed, the sore on my foot comes back and breaks open, I bruise easily, I look swollen with lesions on my face, I am so depressed at how I look and feel, I swell up, yet because I am a positive outgoing person I put on my make up and pretend I am happy. but I feel like dying.....I feel like a freak, I feel ugly,  I documented my low body temp even though I was sweating as if I had a fever. I took pictures and videos of me taking my temps, the red face, neck, and lesions, No doctor has been able to regulate me since, even with the proper meds. 

April 2011 Eye doctor tells me the blurry vision is from Grave's Disease-1st I have ever been told this. 10-15lb weight gain(I thought I was hyper not hypo, so why the weight gain)?
May 2011 I am told I need my gallbladder removed but 1st they have to ablade(kill) my thryroid. I kindly decline and tell the doctor she is wrong, at which points she states she wants me to see a therapist.
Then I am referred to an Endocrinologist who tells me "you take pill to kill thyroid then you take thyroid medicine rest of your life, we do this over 50 yrs now". UUUHHHHH NOOOOO!
June 2011 I get a new GP doc and he explains the situation to me better, and he is going off the diagnosis from what my last doctor said and my blood test results which include elevated cholesterol, liver enzymes, hyper thyroid and poor hormone function.
Aug. 2011 I give in and even though I still believe this is wrong, I give in because most people think I am the one who is wrong.
Nov 2011 Thyroid is not dead but in normal state so GB is removed
Dec 2011 thyroid dies while on vacation.
Jan 2012 I start hypo medication
Feb 2012 still feel ill, run down and now vocal issue start to manifest, blurred vision worsens, weight gain continues.
March 2012 no relief and feeling much worse, the thyroid med is not helping at all.
April 2011-June 2012 I am getting sicker and my weight continues to go up, my voice is hurting to try to speak, my voals sound awful, I am getting depressed, my body hurts all over, I am so tired of not sleeping.
June 2012 Hashitoxcosis/hashimotos thyroiditis diagnosed/ turns into Hashimotos Thyroiditis once the thyroid died.
Sept 2012 New endocrinologist tells me I am very sick and suspects i will be in a coma fighting for my life in approx 2 weeks.
Feb2013-March 2013 Mayo Clinic,they think he thyroid is fine,  they can not explain my blood test being abnormal on several things, so they send me to Liver transplant, at first the liver team is telling my mother in love and me why I need a transplant. I am shocked and tell them no this is not right; after a lot of testing the Liver team agrees that I do not need a transplant. But they can not explain why I am so sick. 
April-Sept 2013 more doctors, more testing, no vocals, just been hiding from the world from the lesions on my face, the weight gain, my inability to think straight, muscle cramps, tremors, insomnia and so much more.


Sept 30, 2013 FWBMC Mammo tech, " yes, it ruptured, but we saw a leak 2 yrs ago". WHAT??? This is the 1st I am told of any issue with my implants; I go look at 2011 written report; it has NORMAL written on the paper. 

Does these look NORMAL?
 The left implant for the most part is what an intact implant looks like. The right implant clearly has something wrong.
Oct 2013  During Dr. Kolbs exam and my surgery so adds Fibromyalgia, Mastodyna, Silicone Immune Dysfunction,  

after surgery, (I tend to smile when a camera is around) Chronic Staph and mold infection, Fibrocystic tissue illness to my list of issues.  

Nov. 2013 ER visit due to infection staying in my body and
swelling then I am sent to the infectious disease doctor to start IV antibiotics with a PICC line in since the oral meds are not clearing up my this time I was diagnosed with Raynards Syndrome. 

March 19, 2014 I have just been confirmed to have Rhuematoid Arthritis. 1st generation in my family for all of these.


  1. In the News and research on Implants
    Here are a few resources to check out, well not a few a ton~

    medical journal articles and more : the first is a great video~
    Mary Mc Donough
    Mary McDonough
    Celebrity women who have been sharing their stories in an effort to prevent others from making the same mistake include Oscar nominee and Golden Globe winner Sally Kirkland, Mary McDonough and Judy Norton from "The Waltons," Leigh Taylor Young ("Dallas," "Picket Fences," Slackers), Linda Blair (The Exorcist) and Mariel Hemingway (Manhattan, Star 80)
    Dr Kolb on Saline Implants
    Dr Kolb on Silicone Implants
    Dr Kolb article!reel/c65q
    April's site
    periprosthetic capsules and connective tissue disease... the connection

    I have a ton of other resources from my saline and silicone support group~

  2. Anne, I hate that you've been through so much suffering but I admire your strength and determination to seek answers. Continue to follow that inner voice and let it guide you through this trial. I will spread the word and share this blog with my friends and family as well. Your an amazing mom, wife and now you can also be an advocate for others while you are going through this. I love you and continue to keep you in my prayers.

  3. Thank you Tara~
    I ahve heard so many state that I must be here for a reason to have survived that rupture and live to tell the story. So, i give all the Glory to god and hope I can make a difference in many others lives~!~

  4. I have a ruptured implant from a car accident, five years ago. I have lots of medical problems because of it. I can't afford to get them removed,and my insurance will not cover them. I worry about the implant everyday and how it's destroying my body. I have never been so stuck..